Links to resources and other information
If you have resources to add to this list, please send them in!
Blogs
- Caregiver Support blog. Written and maintained by Sara, who is in her early 30s and caring for her mom. You can read more about her story here. Also has useful/relevant links and lots of comments from her readers.
- The New Old Age from Jane Gross at the New York Times. I like this blog and look at it frequently, I think the writing is pretty from-the-the heart and informative. The content, though, is pretty solely aimed at caregivers who are baby boomers. So a lot doesn't quite resonate with me.
Websites
- The Spoke Your Mind network is a social network for children of those with Young Onset Dementia.
- Young Carers.net is a resource for very young caregivers (children and teenagers) in the UK. The discussion boards are pretty active and they have live chat sessions from time to time as well as a variety of help topics. Intended for use by those under 18.
Articles
- Feb. 2009 article from the Times focusing on the caregiving responsibilities of children and teens In Turnabout, Children Take Caregiver Role.
- January, 2007 article from the Wall Street Journal
Young Caregivers: Parents turn to children for help - March, 2006 article and audio piece from NPR Caregiver Role Brings Purpose -- and Risk -- to Kids
Film/video
- A forthcoming documentary on young (seems to be mostly teen-aged) caregivers in Florida. Grown Up Kids: A Film by Robyn Symon
Organizations
- Well Spouse Association for supporting spousal and partner caregivers.
- Association of caregiving youth
- AARP has a section on their website entitled Navigating the World of Caregiving. Not geared toward younger caregivers, but contains some helpful legal and financial information. They also have a fairly active forum.
- The National Family Caregivers Association
Publications
- This is a fairly in-depth publication list from the AACY - includes academic writing and conference reports.
Books
- Caregiving: Hospice-Proven Techniques for Healing Body and Soul. I picked this book by Douglas C. Smith up at the library recently, and I have been appreciating his approach. Written by a hospice worker and former caregiver, and incorporating personal stories from others.